If we were truthful, we would admit that we ALL judge...

There are a few things in life that get my blood boiling. I would like to discuss one of them with you now. While scrolling through Facebook this morning, I came to a post on one of the dysautonomia pages that I follow. I too have a form of dysautonomia. It is most likely caused by my Multiple Sclerosis. Dysautonomia is the dysfunction of one's autonomic nervous system. Here is a short description of what dysautonomia is taken from Dysautonomia International;

What is Dysautonomia?

 

Dysautonomia is an umbrella term used to describe several different medical conditions that cause a malfunction of the Autonomic Nervous System. The Autonomic Nervous System controls the "automatic" functions of the body that we do not consciously think about, such as heart rate, blood pressure, digestion, dilation and constriction of the pupils of the eye, kidney function, and temperature control. People living with various forms of dysautonomia have trouble regulating these systems, which can result in lightheadedness, fainting, unstable blood pressure, abnormal heart rates, malnutrition, and in severe cases, death. 

As someone who has been diagnosed with Multiple Sclerosis for well over 12 years and maybe many more when looking back at some of the symptoms that I had back in my late teens and twenties, I have lived through more symptoms than I am able to count or even recall. I have always stood by the statement that vertigo is by far my worst symptom. There is just no work around for the sensation that your body is spinning while you are throwing up and unable to stand in an upright position. It's the most distressing situation to live through and I have had it chronically for months at a time. Unable to move off the couch. Unable to move my head at all without it throwing me into the spins. After years of some recuperation to that area of my brain that was damaged (the brainstem), I have been left with residual permanent  dizziness. I am dizzy 24/7. The only thing that changes is the intensity of my dizziness. It's not spinning vertigo, although I do get bouts of that at times still too. My own body movements make me dizzy and nauseated. After vertigo, my dysautonomia comes in second place. 

About two years ago, I began to have symptoms of dysautonomia. At first it was subtle. I felt "off" at times. I learned to start taking my blood pressure periodically. My blood pressure was dropping to the point of nearly causing me to pass out. When all of this began, I was on yet another new MS drug. I believed at the time that the new drug was causing my symptoms so I stopped taking it. Over time, my symptoms got increasingly worse. I got to the point where my heart rate would shoot up and my blood pressure would drop to the point of being unable to register on my blood pressure monitor. I also began having chest pain, shortness of breath, palpitations and I had also stopped sweating. My body's thermoregulation system is completely messed up as well.  I go from being extremely hot to freezing and vise versa. I am unable to stand in an upright position for very long without all of these symptoms starting up. I take medication to help with my tachycardia (increased heart rate) and I take a medication to increase my blood pressure in the morning when I first get up. If I have to be someplace, I wake up hours before I need to be there in order to give my body adequate time to adjust to the medications. When I first wake up, my heart is normally racing and my blood pressure is nil.  I feel like a limp dead flower. Once I take my medication, I can begin to feel the blood in my body start circulating and the feeling of being a dead flower begins to morph into a dead flower coming back to life. I begin to feel somewhat human again. 

These autonomic symptoms are at the least very uncomfortable and at their worst, completely debilitating. I have many MS symptoms that I live with on top of these debilitating ones such as numb feet, pins and needles, muscle twitches, muscle spasms.... I could type out a very long list of symptoms which also includes going completely blind in my right eye and random stabbing nerve pain that jolts me like electricity but I won't list them all.

Because of my associations on-line, I know that there is a very large number of people, especially young woman, who live their lives from bed due to dysautonomia. Many of them call themselves "spoonies", based on "the spoon theory" that someone made up to try and explain to healthy folks what it is like to live with a debilitating chronic illness. Many people who suffer from POTS, which stands for postural orthostatic tachycardia syndrome and is a form of dysautonomia, are able to still function enough to live their lives to the best of their ability. Many are woven into society and are walking around with this invisible debilitating illness and no one would ever know by looking at them. 

This morning as I read a post on Facebook from a young lady with a form of dysautonomia, I was deeply saddened. She wrote about how when she parks in the handicapped spot at a store, she will fake a limp in order to not be scorned by people that may verbally attack her for "looking normal" while parking in a handicapped spot. Many people "liked" her comment and not only did they "like" it, many admitted to doing the same thing! Oh my heart sank.... Not only because I am one of those people who doesn't look "that sick" and have been scorned myself for using a handicapped spot, but even more so because I've been on the other side of the coin and have been the person pre-judging others in my mind who don't appear to look as sick as me! If we would all be honest with ourselves, we would have to agree that we are truly wicked to the core without God and we need His help to recognize that. Well, that help did come 2,000 years ago and He is coming back again. Lord thank You for revealing my sin to me regularly but never condemning me for it. The good news of what You have already done for me (dying on the cross and living a perfect sinless life) unleashes the power to set me free from both my sin and condemnation. It relieves me of my guilt and shame.  Thank You for Your forgiveness and Your cleansing. I need it day by day and moment by moment as I walk the path that You have established for me. Don't we all need Him?

Jeremiah 17:9English Standard Version (ESV)

 The heart is deceitful above all things,
    and desperately sick;
    who can understand it?

One Picture of Grace...

After attending the same church where God saved us for 17 years and we had served there diligently in service oversight for most of those years, we began feeling the need to listen to other bible teachers in order to get fed spiritually. I remember Kenny and I crossing Alligator Alley on our way to Sanibel one weekend quite a few years ago and we listened only to podcasts by Pastor Tullian. His messages were addictive as we listened to one after the other, yet something in me felt like they were too good to be true. I had mentioned that to a friend of mine who attended Coral Ridge Presbyterian. I told her that he seemed "unbalanced" in his teachings. He's always talking about grace. It almost made me mad because I wanted to believe that what he was saying was true, but I doubted. In my heart I never felt like I was measuring up as a Christian after all these years. I couldn't understand why I always had some of the same struggles and why it seemed to me that everyone else around me had it all together but I didn't. I was getting physically sicker, I had to leave my profession due to my illness, my kids were going off in different directions and I was often told that it was because of what I was or was not doing. At one point I was even told by a Christian sister that my young adult child needed a curfew. I was also told by yet another sister to never speak the words Multiple Sclerosis because I was "claiming it".  I just couldn't control my life and make it better. I didn't want the burden of trying to be God anymore. Enter Pastor Tullian's books, Jesus + Nothing = Everything, Glorious Ruin and eventually One Way Love. The chains were beginning to fall off of me...I could breathe again. 

After praying for the last 3-4 years about seeking a new home church, God answered our prayers. Because of my MS, I am not that mobile due to chronic dizziness and autonomic dysfunction. We had begun to watch church on-line and one Sunday I randomly decided to turn on Coral Ridge instead of our former church. Pastor Tullian started his series on Romans that very day. I was hooked from that day forward. Everything about the experience made me want more, the worship, the message and the gospel being preached in a way that made my spirit re-awaken. I felt like a starved person getting a free meal at an endless buffet.  After watching on-line a few times, I took a screen shot of some of the lyrics to the song "From the Depths of Woe". I just had to hear that song again. Kenny searched for it and found it on-line and he ended up downloading it onto his computer. I walked in his office one day and it was playing through the speakers. I said, "that's the song I fell in love with!". I couldn't listen to it without weeping every time. From that day on, I told Kenny that no matter how bad I felt physically, I had to get to Coral Ridge Presbyterian to experience it live and in person. 

Our very first time attending, Zac Hicks and the worship band played that very song. Without sounding like I'm over spiritualizing, I felt like God had said to me, "this is your new home and church family". We never looked back and God has kept me well enough to attend every Sunday since. We heard about the New Member Meeting and we were determined to go. Little did I know that right before the meeting, after having MS for over 12 years, I would go completely blind in my right eye. I had to do a 5 day course of IV Solu-Medrol which makes me feel like absolute death when I come off the drug. The New Member Meeting was held on a day when I felt my absolute worst physically. I felt like I should have been driven to the hospital instead of the New Member Meeting but I was just so determined to be there. I had my bad eye covered like a pirate so I could see better out of my good eye. As Pastor Tullian was listening to everyone's testimonies in the room, my heart was racing because it dawned on me right at that very moment that God had allowed me to go blind physically yet spiritually, I could see better than I ever had before! I have so much gratitude & thankfulness for Pastor Tullian's passion to deliver the true message of the Gospel in all it's fullness to ALL who will listen. I felt compelled to thank him for the huge part that he played in my life as he helped to set yet another captive free!  I told him that I was blind but now I see!!! New light has been brought to the words of my Savior...

Luke 4:18-19 English Standard Version (ESV)

18 “The Spirit of the Lord is upon me,

    because he has anointed me

    to proclaim good news to the poor.

He has sent me to proclaim liberty to the captives

    and recovering of sight to the blind,

    to set at liberty those who are oppressed,

19 to proclaim the year of the Lord's favor.”

Dysautonomia added to the list...

Psalm 46:1

New King James Version (NKJV)

46 God is our refuge and strength,

A very present help in trouble.

My life has once again been changed, A LOT. A new word has been added to my vocabulary, Dysautonomia. In particular, POTS, which stands for postural orthostatic tachycardia syndrome. It's when one has dysfunction of the autonomic nervous system which messes with one's ability to maintain a normal blood pressure and heart rate upon standing. In between these episodes, which are a regular part of my day, I have heart palpitations, mild chest discomfort, jittery & shakiness, shortness of breath and just an overall unwell yucky feeling. I have seen my General Practitioner, my MS Neurologist and a Cardiac Electro Physiologist. They all seem to concur that this is my diagnosis. Whether or not it's a stand alone disorder or if it's actually caused by my MS seems to be a bit of a mystery, but regardless, it is treated the same. I'm currently taking some medications to help alleviate the debilitating symptoms. I've started taking a new beta blocker called Metoprolol and also a drug called Midodrine that helps stabilize my blood pressure. It has been a fine balancing act of trying to take these medications in a way that helps relieve some of the relentless 24/7 symptoms that I experience. When the meds start to wear off, I'm at square one. It has been like climbing a mountain daily. This is all on top of my MS symptoms. Only God could get me through my days. The reality of my daily sufferings and continuing to be a wife and mom can be very overwhelming. My abilities are decreasing once again which tends to be par for the course with Multiple Sclerosis. In an effort to draw closer to The Lord, I have been taking a fast from social media. It has been very freeing in that my OCD-like obsession to scroll through the entire newsfeed has been broken. This has freed up my day for more bible reading, book reading, devotion reading, listening to teachings and journaling my prayers. This I feel is more of what I would like to accomplish with my time. God is my refuge and my strength. He is my very present help in my time of trouble. He is the Living God. No different than the Living God we read about in our bibles. He's the same yesterday, today and forever. If I am feeling distress, I cry out to Him. He hears my cries and knows my pain. He comforts me. He reminds me through His Word that this is all temporary and that He loves me and won't ever forsake me. I don't enjoy living with MS and now Dysautonomia, but I can definitely see His fingerprint on my life as I strive to know Him more daily in my walk (which is now closer to a crawl at this point). Who else is going to understand the depth of my pain? No human could ever fill the need I have to be understood completely. He knows my frame. He knows every hair on my head. Nothing comes my way that He doesn't already know about. I can rest in that. It gives me peace in the midst of my trials, which are many....

Love Your Enemies...

Matthew 5:43-46

English Standard Version (ESV)

43 “You have heard that it was said, ‘You shall love your neighbor and hate your enemy.’ 44 But I say to you, Love your enemies and pray for those who persecute you, 45 so that you may be sons of your Father who is in heaven. For he makes his sun rise on the evil and on the good, and sends rain on the just and on the unjust. 46 For if you love those who love you, what reward do you have? Do not even the tax collectors do the same?

Last night Kenny and I had "date night". We haven't really had a date night in quite a while. Our normal Friday night date night routine had turned into Kenny going through the drive-thru at Pollo Tropical because I have felt too unwell to cook or to go out for dinner. My latest ailment (dysautonomia) added to my long list of ailments has been drastic fluctuations in blood pressure and an increased heart rate that have brought me to the point of feeling like a limp wet noodle on the verge of passing out almost daily. The cardiac specialist has adjusted my meds and my body is trying to behave so that I am able to function at least a little bit. 

Well, back to date night. We went out for dinner and afterwards we went for some frozen yogurt. We sat outside to enjoy the cooler temperatures. There were some rowdy, loud, vulgar mouthed young men walking back and forth along where we were sitting. I started getting chilly so Kenny left me momentarily to get my sweater out of the car. While he was gone, the young men walked past me again and were intentionally using extremely vulgar language in what seemed like a plot to get a reaction from me. I kept my thoughts to myself, kept my eyes looking downward and away from them and I ignored them. Inside my head, my mind was racing. I had so many thoughts running through my brain. I actually felt quite vulnerable and was scared they may try to mess with me somehow.  I felt such anger about their behavior and also a deep sadness that these kids were so incredibly disrespectful in the company of the adults around them. My flesh wanted to rise up and tell them what I thought about their vulgar language but I could actually sense the danger if I were to do so. Kenny returned with my sweater and I told him about the vulgarity that he missed while he was gone. We continued to hear their loud rants going on behind us. While leaving and walking to our car, we had to walk past them. One of the kid's yelled out to me, "nice stick!", referring to my cane. I honestly couldn't believe a young man could be that rude, cold and heartless to a middle aged woman like myself. I thank God for my husband's self control because the scene could have gotten ugly. 

This brings me to the verse above. To be honest, I wanted to take "my stick" and knock the kid silly. I actually was struggling with how to respond to him and lifted up a quick prayer for wisdom and self control. I looked at my husband and told him how I literally felt like beating the kid with my cane. As we got in the car and I thought about the entire situation I could tell that I was being put in a position to "love my enemy". My heart began to soften a bit and I actually regretted not doing something "radical" like hugging him. That could have turned out really ugly too. "For if you love those who love you, what reward do you have?". Yes, I needed to do what I did. I exercised self control and I prayed for those young men. I continue today to keep them in prayer along with the entire generation of youth. Not all young people act or behave this way obviously, but for the ones that do, I pray for them. I'm grateful that no one decided to play the "knock out game" with us and I'm also thankful that my husband and I know Jesus. I pray those young men will meet Him too before He comes back as Judge....He is definitely returning! 

Revelation 3:11

English Standard Version (ESV)

11 I am coming soon. Hold fast what you have, so that no one may seize your crown.

Free Pastor Saeed

Hebrews 13:3

New King James Version (NKJV)

3 Remember the prisoners as if chained with them—those who are mistreated—since you yourselves are in the body also.

I haven't blogged in a while but when I heard about an event that is spreading like wildfire through our social media outlets, I knew that even I could be used as a tool to help spread the word about Pastor Saeed Abedini, an American Pastor who has been imprisoned in Iran soley for being a Christian for well over a year now.  Just one person can make a difference and this is my attempt to do so. Even one prayer lifted up in faith to our Great and Mighty God is powerful. Just think about the power of countless prayers lifted up in faith by many of His saints! 

The story of Pastor Saeed has opened my eyes to the growing rate of persecution of the church and the body of Christ both here at home and across the world.  I have tried to envision myself in the position of Naghmeh Abedini, Pastor Saeed's wife and I wonder what I would do if it were me in her situation. Her husband left the comforts of their home here in the United States to go and start an orphanage in his homeland, Iran and ended up being arrested and thrown into the notorious Evin Prison with an 8 year sentence simply because of his Christian faith. He has been imprisoned for over a year now and has suffered severe physical and mental abuse at the hands of his captors. He has recently been transferred to Rajaei Shahr, an even deadlier prison, where he is surrounded by extremely dangerous inmates that are mostly made up of rapists and murderers. His overall health is continuing to decline rapidly. 

Naghmeh lives in Idaho with their two young children. When I think about her, I often wonder what I would do if I were in her situation. Who would I turn to? Who would care? Who would help? After my initial shock, I would be pleading and praying to God for my husband's release, I would be going to my church family, all of my friends and acquaintances, and maybe even the national television networks to get my story told. I would fight and do whatever it takes to get my husband back home safely. These are just a few of the many things that Naghmeh has been doing. 

Now is our chance to help. Today is an opportunity for all of our voices to be heard. We long to see Pastor Saeed set free as well as any other Americans who are being detained and imprisoned based soley on their faith alone. We trust in God's sovereignty yet we know that we can be used by God and our prayers are powerful.

If you would, please take time today to pray for Pastor Saeed, his wife Naghmeh and their two children as well as all of our persecuted brothers and sisters in Christ. Our prayer today is to flood social media with Pastor Saeed's story and to bring to light the injustice of this horrific situation.  If you feel led to help get the word out, please use the following hashtags  #savesaeed & #freesaeed on Facebook, Twitter, Instagram and any other social media outlet that you use today and any day going forward. Also pray that the President of the United States of America and the entire Administration would work diligently to bring Pastor Saeed and all other Americans being detained and imprisoned soley for their religious beliefs home. 

Thank you for reading this and I am looking forward to seeing our prayers answered according to God's perfect will. 

Hebrews 4:16

New King James Version (NKJV)

16 Let us therefore come boldly to the throne of grace, that we may obtain mercy and find grace to help in time of need.

My Stream in the Desert

Isaiah 43:18-19

New King James Version (NKJV)

18 “Do not remember the former things,

Nor consider the things of old.

19 Behold, I will do a new thing,

Now it shall spring forth;

Shall you not know it?

I will even make a road in the wilderness

And rivers in the desert.

This verse is speaking volumes to me today. I am in a desert. It may be a temporary relapse but I certainly feel parched in this dry land I am in. I am hurting, in physical pain and discomfort. I want to look back and remember feeling well but I know that I must keep moving forward. As I lay in bed and feel like my legs are heavy weights with magnets, it feels like a huge magnet is underneath my bed pulling and keeping me down. I fear that this disease is catching up with me and every day lately I wonder, will this be the last day that I walk? Not a far fetched question to ponder when you have lived with Multiple Sclerosis for over 11 years and little by little your brain and spinal cord are being eaten away at. When the wrong words come out of my mouth and I have to ask, "did I say that?", when I forget what I'm thinking in the middle of thinking, or forget what I'm saying in the middle of saying something, when my hands randomly drop something and it crashes to the floor, when I can't manage to move at all without increasing my dizziness, when my arms are tingling from folding warm laundry, when my back just aches and my strength is declining... I can't help but think that satan has asked whether he can sift me like wheat. I desire to cling to my Savior and remember the cross. He understands every single little twinge of pain and the deep feelings of being isolated. There isn't a single thing that my Lord doesn't understand about my personal situation. I am isolated in that many of my friends with MS cannot comprehend being dizzy 24/7. My dizzy friends with vestibular disorders can't comprehend having all of the MS symptoms on top of the dizziness. I call it my "combination platter". If I allow myself to feel like I have things worse than anyone one else, it puts me in a place where I could become bitter. May that never be. I turn to my Savior and ask Him to let His grace be sufficient for me this day. Let His empty tomb be a reminder that this will end well in due time. A new thing is happening. I don't know all the details but I trust what He has said to me today through His Word. He will make a road through my wilderness and a river or stream through my desert...God is good, all the time. 

In the cleft of the rock...

Exodus 33:22

New King James Version (NKJV)

22 So it shall be, while My glory passes by, that I will put you in the cleft of the rock, and will cover you with My hand while I pass by.

This is one of my favorite verses. I'm not sure why but I just love to picture this scene. Sometimes I feel like God has placed me in the cleft of the rock. I am hidden and isolated as the world goes by and the people around me are participating in everyday life. I am on the sideline, yet I have joy knowing that I am exactly where God wants me to be. He blesses me with just enough glimpses of His glory to confirm that I am where He wants me and in His will. I haven't blogged in quite a while and honestly, I haven't had the desire to. The past few days I have been flooded in my spirit with joy. I still feel physically awful and weak but my spirit is soaring for some strange reason. After saying goodbye to one of our friends who moved home to heaven, the sadness was overwhelming yet it has caused more anticipation about my final destination. To be present with The Lord! 

I saw a post on Facebook yesterday that said, "don't miss your ministry because of your misery". Something just clicked. Not that I didn't already know that The Lord would use my Multiple Sclerosis to minister to others, but my eyes were opened to something new. I realized that I have tried to work around my MS and even minimize it. It has taken over too much space in my central nervous system to hide or ignore anymore. It is taking over my physical body but, there are some things that MS cannot steal from me. It cannot steal my salvation, my hope, my eternal home. Things are going south in many ways healthwise but I will be making a complete u-turn when God calls me home. This life is not the end. The end we experience here, also known as death, will be the doorway to eternity. Heaven or hell forever. Praise God for sending Jesus to die for us...a sinful people. Placing your trust in Him for salvation, repenting of your sin and yielding to His Holy Spirit can save you from eternal damnation.  Although my circumstances are not great and I can be pretty sure that my health will continue to decline based upon the nature of the beast, I am still able to live with the confident hope of ridding myself of this "tent" and being free from sin, disease and death! What a splendid time it will be! Praise be to God!

2 Corinthians 5:1-5

New King James Version

5 For we know that if our earthly house,this tent, is destroyed, we have a building from God, a house not made with hands, eternal in the heavens. 2 For in this we groan, earnestly desiring to be clothed with our habitation which is from heaven,3 if indeed, having been clothed, we shall not be found naked. 4 For we who are inthis tent groan, being burdened, not because we want to be unclothed, but further clothed, that mortality may be swallowed up by life. 5 Now He who has prepared us for this very thing is God, who also has given us the Spirit as a guarantee.